Tuesday, December 27, 2011

Paint Your Heart Out is coming to Lake Worth!

Paint your heart out is going strong in January! We have 5 houses scheduled for January in Lake Worth along with other homes through out Palm Beach County! We hope to continue to make a difference all year long in 2012 and are always looking for more groups to sign up and participate in one of our events. If you would like to sign your group, church, club and/or civic establishment to be a part of such a wonderful event please go to this link and sign up! http://www.swa.org/site/recycling/Volunteer_Opportunities/volunteer_application.htm

Here is the schedule for January and any volunteers are welcome to participate! Saturday

Saturday 1/7 9am - 1pm
Group: Palm Beach Atlantic University
1 house in West Palm Beach

Group: Palm Beach Central High School Key Club
1 house in Lake Worth

Thursday 1/12 9am - Noon
Group: Lynn University "Day of Caring"
2 Houses in Lake Worth

Saturday 1/14 8am - 1pm
Group: First Baptist Church of Hypoluxo
1 House in Lake Worth

Sunday 1/15 9am - 1pm
Group: Judea
1 house in Palm Beach Gardens

Thursday 1/19 9am - 2pm
Group: Lynn University "Field Service Day"
12 houses in South Bay

Saturday 1/21 9am - 1pm
Group: BLAST
1 house in Lake Worth

Saturday 1/28 9am - 1pm
Group: Riviera Beach Youth Empowerment
1 house in Riviera Beach

Sunday 1/29 9am - 2pm
Group: The Neshamah Institute
1 Housein Boca Raton

To volunteer for these events please call Linda Moreno at 561-697-2700 ext 4717 or by email Lmoreno@swa.org or Joanna Aiken at 561-697-2700 ext 4701 or via email at jaiken@swa.org

A few other events!
Adopt-A-Spot Clean Ups

Saturday 1/7 8am-10am
Group: Friends of Jupiter Beach
Location: Anita Lankler Pavilion at Ocean Cay Park (Corner of A1A and Marcinski Road Saturday

Saturday 1/7 8am - 10:30am
Group: Sand Sifters Harvest Beach cleanup
Location: Oceanfront Park in Ocean Ridge 6415 N. Ocean Blvd Saturday 1/28 8am - 10:30am

Saturday 1/28 8am - 10:30am
Group: Sea Angels Location: Ocean Inlet park 6990 n. Ocean Blvd Ocean Ridge (Look for the signs!)

Tuesday, December 20, 2011

Pulmonary Veno Occlusive Disease

We wanted to take a moment to give you the update on Cynthia! They are getting ready to go up this week for the proceedure and where they are very excited they are also very nervouse and worried about the expense. She will have to stay up north for around 6 months so they are having to pay for a place there as well as maintain their Lake Worth Home not to mention the expense going back and forth for her family. If you would like to contribute to their fund please contact us at nhnproject@gmail.com or rolohlakeworth@gmail.com for the information. Please keep Cynthia and her whole family in your prayers over the next 6 months and together we will make a difference in this very tough journey! As I stopped by to visit a neighbor who had called me yesterday it was quite a shock and a surprise. Cynthia Mehl answered the door of her very charming home while the trucks outside were swapping out her Oxygen Tanks.

What I expected was to be greeted by someone who would be frail and weak but was surprised to be greeted by a very joyful, upbeat loving individual who immediately invited me into her home. As I walked in the first thing you can't miss is the shear beauty and charm of her home...and then the 5 or 6, 3 feet in diameter, 3 to 4 feet tall canisters of Oxygen. Lined up and ready to be used.

See Cynthia was diagnosed with Terminal Lung Cancer in 2003 and survived. Then was diagnosed with Pulmonary Hypertension in 2004 and kept on going. Then in 2009 she was diagnosed with Pulmonary Veno Occlusive Disease (see below for details or click this article to read more about PVOD.)

Cynthia looks just like you and me and had all the energy and joy of a normal person except for the fact that she has to be on Oxygen 24/7, What will help her? A Double Lung Transplant at Duke Medical Center.

Why do you ask that I want to write about this? One she is my neighbor and now a dear friend, two we in ROLOH as in many of our neighborhoods care about each other and third my own father passed away from Lung Cancer. Cynthia has to go through a very serious procedure, Double Lung Transplant....Recovery will be 4-6 Months if not longer depending on complications...

What is needed to help Cynthia? Prayers, good wishes and happy thoughts and knowing that people care about her and this rare condition. Where Cynthia and her husband Gordon made wise decisions with their health insurance that still does not cover the cost of traveling back and forth, hotel stays, gas cost and many other ancillary expenses that arise in a situation like this. Not to mention they still need to maintain there very lovely home in order for Cynthia to come back and enjoy for many years to come.

Cynthia and Gordon have set up an account at Wells Fargo and donations can be made direct to Cynthia's Wells Fargo Account If you would like to make a donation please email nhnproject@gmail.com and I will forward you the flyer to complete and drop off at a Wells Fargo...She should be heading to Duke Medical in September and then she will have a long road ahead before her from that point. Below is more information on PVOD and remember in Giving in tough times even the smallest of donations are a blessing and lets not discount the power of Prayer!

Sincerely,
Robert Waples

Pulmonary veno-occlusive disease is an extremely rare form of high blood pressure in the lung area.

See also: Primary pulmonary hypertension

Causes:
In most cases, the cause of pulmonary veno-occlusive disease is unknown. The condition may be related to a viral infection. It may occur as a complication of certain diseases such as lupus, or as a complication of leukemia, lymphoma, chemotherapy, or bone marrow transplantation.

The disorder is most common among children and young adults. As the disease gets worse, it causes narrowed pulmonary veins, pulmonary artery hypertension, and congestion and swelling of the lungs.

Symptoms:
•Shortness of breath
•Fatigue on exertion
•Fainting
•Coughing up blood
•Difficulty breathing while lying flat

Exams and Tests:
The doctor will perform a physical exam.

The exam may reveal:
•High blood pressure in the veins of the lungs
•Increased pressure in the neck veins
•Fingernail clubbing
•Bluish coloration of the skin due to lack of oxygen (cyanosis)
•Swelling in the legs

Your doctor may hear abnormal heart sounds when listening to the chest and lungs with a stethoscope.

The following tests may be done:
•Arterial blood gases
•Chest x-ray
•Chest CT
•Cardiac catheterization
•Pulmonary angiogram
•Echocardiogram
•Lung biopsy

Treatment:
There is currently no known effective medical treatment. However, the following medications may be helpful for some patients:
•Vasodilator drugs (drugs that widen the blood vessels)
•Drugs that control immune system's response (such as azathioprine or steroids)

A lung transplant may be needed.

Outlook (Prognosis)
The outcome is often very poor in infants with a survival rate of just a few weeks. Survival may be months to a few years in adults.

Possible Complications
•Progressive difficulty breathing
•Pulmonary hypertension
•Right sided heart failure (cor pulmonale)
•Coughing up blood

When to Contact a Medical Professional
Call your health care provider if you have symptoms of this disorder.

Alternative Names
Pulmonary vaso-occlusive disease

References
Barst RJ. Pulmonary hypertension. In Goldman L, Ausiello D, eds. Cecil Medicine. 23rd ed. Philadelphia, Pa: Saunders Elsevier; 2007:chap 67.

Channick RN, Rubin LJ. Pulmonary hypertension. In: Mason RJ, Broaddus CV, Martin TR, et al. Murray & Nadel's Textbook of Respiratory Medicine. 5th ed. Philadelphia, Pa: Saunders Elsevier; 2010:chap 52.

Update Date: 6/2/2010

Updated by: David C. Dugdale, III, MD, Professor of Medicine, Division of General Medicine, Department of Medicine, University of Washington School of Medicine; Yi-Bin Chen, MD, Leukemia/Bone Marrow Transplant Program, Massachusetts General Hospital. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.

Sunday, December 18, 2011

Food Collection Success - Community Foundation Generosity

Thank You to the Community Foundation for Palm Beach and Martin Counties for their Generous collection and donation of food supplies. We were able to add to their collection and provide two very deserving homes extra food for their pantries during the Holiday Season.


Household Number One is a past Paint Your Heart Out home of Loring Philips. Loring took in her Nephew and two kids when life happened and they needed a place to go. Members of the community came together and collected furniture and all sort of items to help them get settled into their new home. The Food provided today will hopefully help as the father gets back on his feet.


Needs for this household is to finish the trim work in the back and we need a skilled person to replace the window trim and wooden shudders around the home. We have a CPU, Mouse and Key board Donated by Shona in Lake Worth, refurbished and just needs a computer screen so we can provide a computer for the home for the kids to use and for the father to continue to look for a full time position. We thank the SOSA Neighborhood with the past painting projects and help. Carmello who is the President of the SOSA Neighborhood even built a new wheel chair ramp for Loring. There is also a large tree in the side yard that has grown way out of control and needs some serious trimming.

If you would like to help at this location please contact jaiken@swa.org or nhnproject@gmail.com and let us know.

Our Second home is Les & Deb Smith along with her brother Lee. Lee is a Vietnam Veteran and lives on Disability. Les & Deb had a failed business due to the poor economy and moved in with Lee in their mothers home. While Les & Deb are searching for work they are all three trying to live off of one income which is not enough to keep their household going. They are great neighbors for the ROLOH Neighborhood and we look forward to Painting the outside and doing some minor repair work with in the home through Paint Your Heart Out and Rebuilding Together of the Palm Beaches!


When we get this work schedule we will also be asking for Volunteers from the ROLOH neighborhood and surrounding areas to help with any donations towards helping with landscaping the front of the property which will provide a full beautification event for our neighborhood!

Needs for this home are still high and include replacing of some fascia boards and eaves, in Desperate Need of a gas stove, Kitchen Sink needs to be replaced, Main Shower is leaking from the handles. Deb has an interview this week and we are praying that she gets the job but in the mean time they have a long road towards financial recovery. Lee was recently in a motorcycle accident and is currently in the VA Hospital and expected to be fine. Les is still job hunting and when not job hunting is giving back to the community by serving on the PBSO COP Volunteer Program which patrols the City of Lake Worth.

If you would like to help with this home please contact jaiken@swa.org or nhnproject@gmail.com.
We hope to have this home on the schedule in the first part of the New Year!!!

We want to thank Pat and all our friends at the Community Foundation for Palm Beach and Martin Counties for this generous food donations to our two families and all our volunteers for making a difference in the lives of our neighbors every day. Lets continue to bring the "Neighbor" back to the Neighborhood in the New Year by promoting an everyday Neighbors Helping Neighbors atmosphere in each area of our county! And remember to Volunteer to make a difference Today!

Thursday, December 15, 2011

Mad Dash Food Collection!

Dear Friends of Lake Worth and our Charitable Partners,

The Community Foundation for Palm Beach and Martine Counties collected this box of food for a neighbor in need and has graciously allowed us to distribute. We currently have two families that could use a basket of Non-Perishalbe foods to ease the financial burden and keep their cupboards full, hopefully making their holiday a more Joyous Occasion.

So we would like to ask our Local friends to help us Double this box so we can give a great gift to both families! If you would like to participate please send email to nhnproject@gmail.com for the Lake Worth area or call 909-8708 and I can pick up. if you want to help with pick up and bring to Lake Worth that is greatly appreciated! This is the "mad dash food collection" as we want to distribute this This Sunday December 18th. Thank you to all our friends at Community Foundation for your generous donation!

Thank all of our wonderful volunteers and partners for the many blessings that you have given us through your charitable hearts and giving all year long!

Please note that we have one family that does not even have a stove in thier home. If you have a used gas stove that can be donated.....here is the message back from our family.

"the space can take an apartment sized stove up to a regular sized - 36" I believe. The gas hook up is about 5 inches out from the wall by the kickboard. I hope that helps you in determining the stove. "